Read the genomics case study and Alzheimer’s fact sheet.
Read the genomics case study and Alzheimer’s fact sheet.
Week 5 Book Discussion
Must post first.
- Svavarsdottir conducted an integrative review about Nordic families with children who are chronically ill. Three exemplar family cases were described. How can nurses be empathetically connected to these families? In Figure 1, Svavarsdottir (2006), shows how family daily activities, family relations and family health are interconnected. Describe how the family’s quality of life is affected if one or more of these 3 factors were hindered. What may be some suggestions to help these families boost their quality of life? Feel free to share any experiences in your career where you were empathetically connected to a family and helped boost their quality of life.
- From your readings and your own experience, identify and discuss five needs of families during a crisis experience.
- Develop a three generation pedigree to assess your personal family history information using the following website https://phgkb.cdc.gov/FHH/html/index.html The pedigree should represent three generations (student, parents, grandparents). Complete your family history, save it, and view your history grid and genogram. Share your insights into your family health with your group (you do not need to post the pedigree itself).
- The Bennet article is a helpful resource for pedigree and genogram symbols when you start diagramming genograms in Module 3.
- Read the genomics case study and Alzheimer’s fact sheet.
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N362Calendar_Summer2022_8weeks.docx
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Family_Focused_Nursing_Care_—-_Chapter_8_Developing_a_FamilyFocused_Nursing_Practice.pdf
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Family_Focused_Nursing_Care_—-_Chapter_9_Family_and_Nurse_Presence_in_FamilyFocused_Care.pdf
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Family_Focused_Nursing_Care_—-_Chapter_13_Doing_For_and_Being_With.pdf
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Bennett2008.pdf
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Svavarsdottir2006.pdf
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Wk5Discussion_FamilyChronicIllnessExperience.doc
Week 5 Book Discussion
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Week 5 Book Discussion
Q1. Nurses can be empathetically connected to Nordic families by actively listening to them and acknowledging their feelings. Empathetic listening can involve listening attentively to the patients and families as well as responding and reflecting on what they say. Nurses can utilize both verbal and non-verbal communication and provide appropriate feedback on what has been said. Nurses should be kind and respectful when helping patients while overlooking their personal biases and strive to provide high-quality care. They can also connect with the families by being compassionate, and non-judgmental, and providing emotional support as well as appropriate interventions to cope with the stress that arises from chronic illness experience (Svavarsdottir et al., 2006).
The family’s quality of life can be affected when family health is hindered. Family health can be hindered when one of the family members is diagnosed with a chronic illness.
The quality of life of an individual is connected to the quality of life of the people around them including parents and other family members. When compared to the parents of healthy children, the parents of patients with chronic illness report lower self-development, lower levels of daily functioning, and emotional instability (Denham et al., 2015).
To boost the families’ quality of life, nurses can recommend interventions to help them cope with the problem such as regular exercise, healthy eating, being positive, and participating in activities they enjoy which can positively impact their physical and mental health. Some of the benefits of the interventions would include avoiding depression, improving memory, and relieving anxiety (Denham et al., 2015). It would be important to involve the families in the care planning and decision-making, develop therapeutic relationships, and also recommend community resources that can be utilized to foster social relations, prevent deterioration of health and improve their quality of life.
In my experience, I have empathetically connected to families and helped boost their quality of life. On one occasion, I was caring for an elderly patient with arthritis. The patient had chronic pain in her knees. I was empathetic and actively listened to her while talking to her in a gentle tone to connect with her emotions. I involved the family when making decisions on the interventions that could be used to manage the patient’s pain. The family had several preferences. I also provided them with the various alternatives that can be utilized, including their risks and benefits. The family was in distress but when they realized that I understood their feelings and was willing to help them in the best way possible, they trusted me. I encouraged them to ask me any question they had and was always present. I encouraged the patient to talk about her experience and assured her that she will be well, which improved the patient’s compliance with the treatment plan. The family was satisfied with the care provided.
Q2. The five needs of families during a crisis experience include the need for social, emotional, psychological, and financial support, and the need for knowledge about the crisis. During a crisis experience, families require social support to improve their resilience and coping. A crisis experience can create emotional problems as the family may feel helpless, hopeless, or overwhelmed by the situation. In addition, families may require psychological support during a crisis experience due to the anxiety, disturbing thoughts, and trauma that may occur affecting the families’ mental health. Families may also need financial support to cater to the medical experiences that may arise during a health crisis experience. Lastly, families may lack the information about the crisis interfering with their ability to effectively care for the affected individual. Nurses should ensure that families are informed about the patient’s condition to help them provide better care to the patient.
Q3. After drawing the three-generation pedigree, I was able to analyze my family from both maternal and paternal sides to identify inheritable diseases. On the side of my paternal grandparents, my grandfather has been suffering from diabetes but my grandmother who is ninety years old is healthy. On the side of my maternal grandparents, my grandfather is healthy but my grandmother has heart disease. As for my parents, none of them has complained of any of these conditions but they are at risk of developing the conditions. My father could be a carrier of diabetes and my mother could be a carrier of heart disease that can be inherited from my maternal grandmother. In my case, I could develop heart disease if my mother has heart disease, be healthy, or develop both heart disease and diabetes, if my father develops heart disease and my mother becomes diabetic from inherited genes. Family history provides essential information that can be used to determine the health of the family and allow individuals to make the necessary lifestyle modifications to reduce the risk of developing genetic conditions (Bennett et al., 2008).
References
Bennett, R. L., French, K. S., Resta, R. G., & Doyle, D. L. (2008). Standardized human pedigree nomenclature: update and assessment of the recommendations of the National Society of Genetic Counselors. Journal of genetic counseling, 17(5), 424-433. https://doi.org/10.1007/s10897-008-9169-9
Denham, S., Eggenberger, S., Young, P., & Krumwiede, N. (2015). Family-focused nursing care. FA Davis.
Svavarsdottir, E. K., & Orlygsdottir, B. (2006). Health‐related quality of life in Icelandic school children. Scandinavian journal of caring sciences, 20(2), 209-215. https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1471-6712.2006.00397.x
Family Constructions and Family Nursing Actions Grid: Still Alice
| Possible family constructs |
What do you notice about the construct in the story? |
Possible nursing actions directed toward the family |
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| Family Health Promotion
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John refuses resources offered from Alice’s neurologist for support groups.
Alice ends up starting up her own support group along with utilizing online support groups for other people with EOAD.
Lydia teaches her mom how to meditate.
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RN would encourage John to find a resource that does work for him. If he doesn’t want to attend support group, he could try the online support group route that Alice had done. RN would emphasize importance of selfcare related to caregiver burnout. Lydia could also teach her father how to meditate as a form of relaxation. |
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| Family Change
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Along with Alice’s undeniable changes throughout her disease progression, Alice’s husband, John, really had to cope with an ever-changing environment/living situation. His responsibilities changed. He had to really take care of Alice as she became more forgetful. He went to doctor appointments, went to conferences, researched Alzheimer’s treatments, started running, etc. His whole life changed along with Alice’s. |
RN would provide resources for home health care or other solutions to take some of the stress off from him. RN might ask if other family members could help take some of the responsibility off his plate. RN would offer techniques and education for caring safely for Alice including any home equipment or other Alzheimer’s related resources. |
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| Family Crisis
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When first diagnosed with EOAD, Alice wanted to keep it to herself. Once she revealed her diagnosis to John and they decided to share right away with their 3 kids, Anne (eldest) panicked and immediately began to worry about her potential genetic predisposition along with her not even yet conceived children. Tom seemed like he was just in denial and having a hard time. Lydia (youngest) took the news the best and seemed kind of like the voice of reason between the siblings. Each family member reacted very differently. |
RN would console patient and encourage her to share how she feels about her diagnosis. RN could help give Alice and idea of how she wants the conversation with her family to go and steps in achieving type of familial mediation. RN could provide resources for genetic testing if family is concerned. RN would offer Alzheimer’s resources as support and education for what to expect/how to plan for the future. |
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| Family Connection
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Each family member had their own special kinds of relationships that evolve throughout the book. A couple examples include, John and Alice’s marriage dynamic along with Alice and her youngest, Lydia, started off with a rather tumultuous relationship. |
RN would encourage connectedness between all family members and help focus their connectedness toward caring for Alice. Encourage healthy relationships and communication between family members. Encourage John to take time for himself and their children to figure out how they want to connect with their parents during this time. (daily emails, dinner every month, etc.)
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| Family Vulnerability
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At the beginning of the book, Alice did not want to be vulnerable and wanted to keep her diagnosis a secret but, I feel like her disease process gave her no choice but to be vulnerable eventually. Especially when she got lost in their vacation home and ended up urinating on herself. She was especially vulnerable within that moment when her husband John found her and helped her get cleaned up. |
RN would offer comfort and encourage Alice to accept support and encourage open communication with John and her children. Emphasize the importance of needing support as her disease progresses and go through all possibilities of vulnerable situations that might occur (such as episodes of incontinence). Help to normalize so that Alice can feel more comfortable. Offer interventions for potentially vulnerable situations, i.e. incontinence pads/briefs. |
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| Family Fear
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Alice had fears for the future. She was afraid of the time that would inevitably be coming when she can’t even remember she has Alzheimer’s and forgets everyone. She made plans for a suicide while still able to. John had fears that it seemed like he kept inside until he’d explode. He told Alice he couldn’t stand being home with her all the time because he didn’t want to watch her decline. |
RN would help Alice to devise a plan for the future while she can that doesn’t involve self-harm. RN would ensure patient safety by assessing for depressive/suicidal thoughts. Encourage John to be open about his fears for the future and provide education on support options. |
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| Family Transitions
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John wanted to take a new job in New York. At the same time, Lydia was waiting to hear back from colleges in New York and in Cambridge. The family discussed/disagreed on moving, especially with Alice’s increasingly worsening Alzheimer’s. Lydia discussed if she stayed in Cambridge, she could move in to help take care of Alice. She also offered to do the same if she ended up going to college in New York.
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RN could provide home healthcare options for Alice in both locations. RN could help to create a schedule of care for Alice, where her children and husband take organized times with her. |
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| Family Cultural Influences
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The family had a tradition of Alice making her family recipe of white chocolate bread pudding on Christmas Eve. |
RN could encourage family to make new traditions. Offer ways for family to celebrate special holidays with Alice’s disease progression i.e. everyone cooking together, looking at photo albums/creating photo memories, etc. |
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Genova, L. (2009). Still Alice: A novel. Pocket Books.
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